Fondazione FONAMA fonama@fonama.org Tel. 335250742  

Scritti a cura di Natale Marzari

Dopo 41 anni e 5 mesi, nel maggio 2006 la magistratura di Trento ha riconosciuto l'esistenza  e  la gravità di quella malattia rara che nessuna altra istituzione o persona singola della provincia di Trento ancora mi riconosce, e per negare la quale ancora mi perseguita.    Natale Marzari

 

ESPERTI ESTERI IN MEDIcINA MITOCONDRIALE

 

ARGENTINA

 

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
chamoles Nestor, M.D. Laboratory of Neurochemistry Director Uriarte 2383 Buenes Aires ARGENTINA nachamoles@fibertel.com.ar 5411-47748615 5411-47745920
                 

 

cANADA

 

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
Davidson AGF, M.D. B.c.'s children's Hospital Director 4480 Oak Street, Room 2c66 Vancouver Bc V6H3V4 cANADA gdavidson@cw.bc.ca 604-875-2142 604-875-2349
Karpati George Montreal Neurological Institute     Montreal cANADA      
Robinson Brian Ospedale per Sick children     Toronto cANADA      
Shoubridge Eric Montreal Neurological Institute     Montreal cANADA      
Tarnopolsky Mark MD, Ph.D., FRcP© McMaster University Medical center, Hamilton     McOntario cANADA      
Tein Ingrid Ospedale per Sick children     Toronto cANADA      
Vallance Hilary University di British columbia     Vancouver cANADA      
Wong L., M.D. B.c.'s children's Hospital Assistant Director 4480 Oak Street, Room 2c66 Vancouver, Bc V6H 3V4 cANADA lwong@cw.bc.ca 604-875-2142 604-875-2349
                 

cOREA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
Za Kim Sook, M.D. Korea Genetic Research center   172-97, Nae Duck 2-Dong cheung Ju city chung Blk 360-172 KOREA kimgene@unitel.co.kr 82-43-216-8280  82-43-215-8288
                 

FRANcIA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
                 
                 

GERMANIA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
                 
                 

INGHILTERRA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
Turnbull Douglass Professor     Newcastle upon Tyne.   UK      
                 

ISRAELE

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
Elpeleg Orly M.D. Metabolic Disease Unit, Shaare-Zekek   Jerusalem 91031 Jerusalem ISRAEL elpeleg@cc.huji.ac.il   972-2-6523114
                 

ITALIA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
                 
                 

OLANDA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
de coo I.F.M., M.D. University Hospital Rotterdam Room SB-2768   Post Box 2060 Rotterdam, 300cB Netherlands decoo@neur.azr.nl 31-104636341 31-104636345
                 

SPAGNA

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
casademont Jordi , M.D. Muscle Research Unit Medical consultant Department of Internal Medicine      Hospital clinic Facultat de Medicina Barcelona  08036 SPAIN  jordi@medicina.ub.es +34932279365 +84932275539
                 

STATI UNITI AMERIcANI

cOGNOME E NOME ORGANIZZAZIONE TITOLO INDIRIZZO cITTA' STATO E-MAIL TELEFONO FAX
Amato R. Stephen M.D. Eastern Maine Health Systems MDA clinic   Bangor ME      
Bach John R. M.D. UMDNJ - University Hospital MDA clinic Director   Newark NJ      
Barone Donald A D.O. University Medical center MDA clinic Director   Voorhees NJ      
Bennett Michael PhD FRcPath DABcC                
Berry Gerard T. M.D. MD                
Boles Richard G. M.D. Medical Genetics, children’s Hospital co-Division Head   Los Angeles california      
Bradley Walter G. DM University of Miami School of Medicine FRcP, Director,   Miami FL      
Brooks David M.D.

University of Pennsylvania

 Instructor

422 curie Boulevard

Room 315, Mail code 6140

 Philadelphia 19104-6140   brooksda@mail.med.upenn.edu 215-898-9838

215-573-6728
Buist Neil MD                
carroll James M.D. Medical college di Georgia Ospedale & clinics MDA clinic Director   Augusta        
carter Gregory T. M.D. center at the University of Washington Medical center co-director, MDA   Seattle WA      
cohen Bruce H. M.D.

cleveland clinic Foundation

 chief, Pediatric Neurology

S-71                           

 9500 Euclid Avenue

 cleveland 4195 OH cohenb@ccf.org  216-444-9182  

216-445-9139
crosley carl J. M.D. SUNY Upstate Medical University MDA clinic Director   Syracuse New York      
cwik Valerie A. M.D.   Medical director NIH/National Institute of Neurological Disorders Bethesda MD      
De Vivo Darryl c. M.D. columbia Presbyterian Medical center MDA clinic Director   New York New York      
DiMauro Salvatore M.D. columbia University college of Physicians & SurgeoNS Lucy G. Moses Professor of Neurology 630 West 168th Street New York, NY 10032 New York sd12@columbia.edu 212-305-1662 212-305-3986
Dotfiglio Rose M.D. Medical college Asst. Professor     Wisconsin      
Feigenbaum Annette M.D.                
Garcia carlos A.M.D. Tulane University Medical School MDA clinic Director   New Orleans LA      
Gibson K. Michael PhD, FACMG                
Goldstein Amy MD                
Goldstein Ed M.D. Scottish Rite children's Medical center MDA Medical Director   Atlanta        
Greene carol MD MD                
Gropman Andrea M.D. NIH Research Fellow

eurogenetics Branch/NINDS

10 center Drive Room 3B14, Building 10

 Bethesda 20892 MD gropmana@ninds.nih.gov 301-435-9324  
Hainline Bryan E. M.D. Riley children’s Hospital clinical Associate Professor

702 Barnhill Drive, Room 0907

 Indianapolis 46202-5225 IN   317-274-3966  

317-278-0936
Haller Ronald center for Exercise Medicine Presbyterian Hospital     Dallas Texas      
Hammond David N. M.D. MDA clinic, Neuromuscular children's clinic in Jacksonville MDA clinic Director   Jacksonville FL      
Hesterlee Sharon Ph.D Muscular Dystrophy Association coodinatrice del dipartimento programmi di ricerca   Tucson AZ      
Hetrick  William D. M.D. committee on Surgical Anesthesia, American Society of Anesthesiologists chair       http://www.asahq.org    
Holstein Stanley B. M.D. MDA clinic MDA clinic Director   New Rochelle        
Hirano Michio M.D. The Eleanor and Lou Gehrig MDA/ALS center     New York New York      
Iannaccone Susan T M.D.                
Kissel John T. M.D. MDA clinic Ohio State University MDA clinic Director   columbus OH      
Kossak Brian D. M.D. MDA clinic MDA clinic Director   Manchester NH      
Kula Roger W. M.D. MDA clinic MDA clinic Director   Brooklyn NY      
McMichael Robert E. M.D. Neurology Associates of Arlington MDA clinic Director   Arlington Texas      
Mozaffar Tahseen M.D. University of california Irvine Medical center MDA clinic Director   Orange california      
Phillips Lawrence H. M.D. MDA clinic MDA clinic Director   charlottesville VA      
Pollack Michael A.M.D. The Nemours children's clinic clinic Director   Orlando FL      
Robinson Brian H. Ph.D.                
Rosenthal Stacie R. M.S. cGC Nemours children's clinic Genetic counselor   Orlando Fla.      
Russell James A. D.O. Lahey clinic Foundation Inc MDA clinic Director   Burlington MA      
Saneto Russell DO                
Sarnat Harvey B. M.D. UcLA cedars-Sinai Medical center Professor

1165 West Tower  

8700 Beverly Blvd.

 Los Angeles 90048 california HarveyB.Sarnat@cshs.org 310-423-4441   310-423-1402
Shoffner John MD                
Singh Keshav PhD.                
Sivakumar Kumaraswamy M.D. Neuromuscular Research center Director St. Joseph's Hospital 240 W. Thomas Road   ARIZONA ksivakumar@chw.edu (602) 406-6360 (602) 406-6360
Strober Jonathan B. M.D. UcSF Assistant clinical Professor

500 Parrassus Avenue,

Box 0136 Room MUE410

 San Francisco 94143-0136 california

stroberj@peds.ucsf.edu

 415-502-4943 415-476-1343
Thorburn David .R. PhD                
Tick David B. M.D. Ozaukee Medical center Staff Physician  407 North Main Street Thiehsville 3092 WI dtickmd@aol.com 262-242-3000 262-242-7191
Van Hove Johan  M.D., Ph.D. Duke Medical center              
Wallace Doug center for Mitochondrial and Molecular Medicine   University of california  Irvine california      
Weiss Michael M.D. MDA/ALS center at the University of Washington Medical center MDA clinic Director   Seattle WA      
Whiteman David A. H. MD                
Winter Susan MD                
                 
                 

 

 

 

 

 

 

 

 

 

 

 

 

centri
id_centro clinica indirizzo id_esperto stato e-mail telefono fax domanda
19
 
 
 
 
 
 
 
 
18
 
 
 
 
 
 
 
 
42
 
 
 
 
 
 
 
 
16 center at the University of Washington Medical center Seattle 17 WA
 
 
 		 3475
3 center for Exercise Medicine Presbyterian Hospital Dallas 20 Texas
 
 
 		 3271
2 center for Mitochondrial and Molecular Medicine University of california, Irvine 19 california
 
 
 		 3271
32 clinica dalla MDA Manchester 34 NH
 
 
 		 2183
37 clinica dalla MDA, Neuromuscular children's clinic in Jacksonville Jacksonville 39 FL
 
 
 		 2154
34 clinica della MDA charlottesville 37 VA
 
 
 		 2169
35 clinica della MDA Brooklyn 38 NY
 
 
 		 2166
21 columbia Presbyterian Medical center New York 22 New York
 
 
 		 3218
4 columbia University college of Physicians & SurgeoNS
 		 1 New York, N.Y.
 
 
 		 4128
27 committee on Surgical Anesthesia, American Society of Anesthesiologists http://www.asahq.org 29
 
 
 
 		 2365
33 Dipartimento ricerche e programmi di servizio, MDA MDA Quartiere Tucson 36
 
 
 
 		 2177
41 Duke Medical center
 		 44
 
 
 
 		 2102
14 Eastern Maine Health Systems Bangor 15 ME
 
 
 		 3559
5 Genetic counselor, Nemours children's clinic,
 		 2 Orlando, Fla.
 
 
 		 4155
40 Lahey clinic Foundation Inc Burlington 42 MA
 
 
 		 2108
15 McMaster University Medical center, Hamilton McOntario 16 canada
 
 
 		 3553
24 MDA clinic New Rochelle 26
 
 
 
 		 3160
26 MDA clinic Ohio State University columbus 28 OH
 
 
 		 2659
6 MDA National Headquarters
 		 7 Tucson, AZ
 
 
 		 4111
25 MDA/ALS center at the University of Washington Medical center Seattle 27 WA
 
 
 		 3014
28 Medical college
 		 30 Wisconsin
 
 
 		 2204
30 Medical college di Georgia Ospedale & clinics Augusta 32
 
 
 
 		 2193
9 Medical Genetics, children’s Hospital Los Angeles 10 calif.
 
 
 		 3957
38 Muscular Dystrophy Association Tucson 40 AZ
 
 
 		 2127
13 Neurology Associates of Arlington Arlington 14 TX
 
 
 		 3577
1 Newcastle upon Tyne. Newcastle upon Tyne. 3 Gran Bretagna
 
 
 		 4128
7 NIH/National Institute of Neurological Disorders & Bethesda, 8 Md
 
 
 		 4099
22 Public Information Department, MDA Tucson 23 AZ
 
 
 		 3204
29 Scottish Rite children's Medical center Atlanta 31
 
 
 
 		 2198
20 SUNY Upstate Medical University Syracuse 21 NY
 
 
 		 3258
8 Texas Scottish Rite Hospital for children Dallas 9 Texas
 
 
 		 4087
23 The Eleanor and Lou Gehrig MDA/ALS center New York, 24 New York,
 
 
 		 3200
10 The Nemours children's clinic Orlando 11 FL
 
 
 		 3895
11 Tulane University Medical School New Orleans 12 LA
 
 
 		 3675
39 UMDNJ - University Hospital Newark 41 NJ
 
 
 		 2112
31 University Medical center Voorhees 33 NJ
 
 
 		 2187
17 University of california Irvine Medical center Orange 18 cA
 
 
 		 3271
12 University of Miami School of Medicine Miami 13 FL
 
 
 		 3583

 

 

 

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